Category Archives: Reblogged

Women and Autism – How one woman’s letter to a psychologist finally helped her receive an ASD diagnosis after years of personal invalidation.

Being disbelieved or belittled for how you are on the inside is never fun. Just because a person is a shrink of some kind, does not ensure knowledge of the way the genders differ when it comes to various syndromes. Nor does it ensure an understanding that while a professional has encountered one type of autists, it does not mean that all autists will react/behave in the same manner.

seventhvoice's avatarSeventh Voice

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This amazing letter was written by a woman who suspected that she may be on the Autism Spectrum, prior to meeting her psychologist for the first time. Here’s what she had to say.

“Dear Dr L—

I hope in this letter I can give you a more thorough explanation of how I feel, the way these feelings affect me and why I think a diagnosis and continued support would be beneficial to me.

I have an over-active mind and experience high anxiety.

I constantly see things at multiple levels, including thinking processes and analyse my existence, the meaning of life, the meaning of everything continually.

Nothing is taken for granted, simplified, or easy.

Everything is complex.

Being serious and matter-of-fact has caused me many problems and I have been told on numerous occasions that I come across as rude and/or abrupt.

Every year my work progress development…

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The Poetry Paradox

I read a lot. A lot. One thing I’ve come to realise is that while I get all of the abovementioned tools, I am often wrong about the commonly accepted analysis of meaning in a piece of work. It seems I puzzle things out so that my answer differs from what others see.

I gave up on trying to understand poetry long ago because I never seemed to see what others saw. Now I just read it and take what I want from it. The same with just about everything else.

Even when writing reviews on the books that I do, I often wonder if I’ve read what other reviewers seem to have read.

Shrugs, Not Hugs's avatarShrugs, Not Hugs

ImageI find myself pondering the commonly held beliefs about autism and Asperger’s Syndrome (AS) on quite a regular basis. One that puzzles me is the perception that people with autistic spectrum disorders are emotionally devoid, that they are emotionless robots. I see myself as quite an emotional person. I study the arts, poetry specifically, which arose in me great swathes of joy, sadness, intrigue and awe. But does this put me at odds with what someone with AS “should” be like? 

Thanks, in part, to my mother’s devotion to reading me bedtime stories I had a passion for books and could read before I started school. At the age of seven I stumbled across a book called Golden Apples: Poems for Children in my primary school library’s meagre poetry section. In it I read W.B Yeats’s short poem ‘The Song of Wandering Aengus’. I cannot profess to have understood the…

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Myths, Lies and Suspicious Minds – Debunking the popular misconceptions that surround the lives of adults with Asperger’s Syndrome

seventhvoice's avatarSeventh Voice

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Since first being recognized in 1944 by an Austrian paediatrician, Hans Asperger, the neurologically diverse disorder known as Asperger’s Syndrome, has  arguably become one of the most widely misdiagnosed, socially misunderstood and contentious disorders on the Autism Spectrum.

For this reason, those living with Asperger’s Syndrome often find themselves having to battle against a sea of erroneous professional and social misconceptions (myths) which leave them wide open to a consistent stream of criticism and suspicion as to who they truly are, their levels of ability, and the validity of their ‘unusual’ ways of being the world.

The aim of this article is to redress some of the myths that have sprung up regarding Asperger’s Syndrome  over time.

Myth 1: Asperger’s Syndrome is both an over and under Diagnosed condition that only affects males .

Since its addition to the DSM in the late 80’s researchers have contended…

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Invisible

I get this feeling a lot when I am at parties with people who might be some sort of family or friends but not really close. Other people probably do not mean to exclude me from their conversation. But their conversation slowly pushes me out until I find myself feeling like an intruder. Perhaps I am perceived as one as well. I imagine I can be a difficult person to converse with as socially accepted “small-talk” bores me. Why is it so difficult to talk about heavier stuff?

musingsofanaspie's avatarMusings of an Aspie

Before we get to today’s post, an announcement: As part of the avalanche of advocacy this week, there will be a flashblog on Monday, Nov 18th. You can find the info at “This is Autism” Flashblog. It’s open to autistic individuals, parents and allies and is accepting writing, video, graphic and comics submissions.

On to the post . . .

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Sometimes [often?] I feel invisible.

I thought this feeling would go away when I grew up. Feeling invisible as a kid is normal, right? Everyone is bigger than you. Smarter, more experienced. And the ones who weren’t bigger or smarter or more experienced, were funnier or prettier or  . . . something.

I never quite understood what that something was, just that I didn’t have it. When teachers forgot my name, I shrugged and mumbled it for them. Then mumbled it again when they mistook my…

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Theory finds that individuals with Asperger’s Syndrome don’t lack empathy – in fact if anything they empathize too much

I have observed this as well. My son who is an autist does not express his feelings well, but he certainly feels it. I guess that could have to do with him being a guy. But luckily I have two sons, and the other son has never had trouble expressing how he feels.

seventhvoice's avatarSeventh Voice

“A ground-breaking theory suggests people with autism-spectrum disorders such as Asperger’s do not lack empathy – rather, they feel others’ emotions too intensely to cope.”

“People with Asperger’s syndrome, a high functioning form of autism, are often stereotyped as distant loners or robotic geeks. But what if what looks like coldness to the outside world is a response to being overwhelmed by emotion – an excess of empathy, not a lack of it?

This idea resonates with many people suffering from autism-spectrum disorders and their families. It also jibes with the “intense world” theory, a new way of thinking about the nature of autism.

As posited by Henry and Kamila Markram of the Swiss Federal Institute of Technology in Lausanne, the theory suggests that the fundamental problem in autism-spectrum disorders is not a social deficiency but, rather, a hypersensitivity to experience, which includes an overwhelming fear response.

“I…

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When the benefits of the many outweigh the good of the few….

… if all it takes is a sense of justification to overthrow those once clear lines of delineation between right and wrong actions, then how much longer will it be before we lose all concept of a collective sense of right and wrong all together?

I ALREADY AM A HUMAN BEING – Written BY Judy Endow

I have to admit that I feel human.

Hovering on the Fringe

This was me growing up. Finally, someone put it all into words. What a relief.

musingsofanaspie's avatarMusings of an Aspie

My apartment building is testing the alarm system so I’m at the park today, sitting at a picnic table, writing. It’s a beautiful day and the park had been deserted until a few moments ago when a group of kids on a field trip showed up to eat lunch at the picnic tables and play on the nearby playground.

Watching them find seats and settle down to lunch reminds me of how much I dreaded field trips as a kid. The unfamiliarity of the setting. Having to find someone to sit with on the bus. Worrying that I would end up without anyone to hang out with during the inevitable free time we were given as a reward for enduring the educational portion of the outing.

As the kids are finishing up their lunch and breaking into little groups to play football or soccer, I hear a crash. Two boys…

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Autistic as a Reclaimed Word

What are my thoughts on reclaiming the word autistic for myself? In many ways autism is a word, but words have power. Perhaps this means that I have to come out of my autism closet and decide how I am going to define autism rather than letting the word define me.

musingsofanaspie's avatarMusings of an Aspie

Most adults on the spectrum prefer to be called autistic, rather than a person with autism or a person who has autism. The general consensus is that autism is not a separable entity. To be “with” something or to “have” something implies that we might somehow be able to rid ourselves of that thing and still be the same person, much like someone who has been cured of a physical illness.

I have always been autistic and always will be. If I was not autistic, I would be a completely different person. My autistic neurology affects how I experience the world and how the world experiences me. I am autistic. This feels very simple and logical to me.

It is not, however, always as simple for others. I’ve noticed that a lot of people in the autism community (which is different from the Autistic community) find the use…

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Tony Attwood – The Pattern of Abilities and Development for Girls with Asperger’s Syndrome

We really do need to do more research when it comes to girls and autism/aspergers. Is the visibility of male Aspergers the reason they are used as a template for what a female Asperger should be?

seventhvoice's avatarSeventh Voice

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The overwhelming majority of referrals for a diagnostic assessment for Asperger’s Syndrome are boys. The ratio of males to females is around 10:1, yet the epidemiological research for Autistic Spectrum Disorders suggests that the ratio should be 4:1. Why are girls less likely to be identified as having the characteristics indicative of Asperger’s Syndrome? The following are some tentative suggestions that have yet to be validated by academic research, but they provide some plausible explanations based on preliminary clinical experience.

It appears that many girls with Asperger’s Syndrome have the same profile of abilities as boys but a subtler or less severe expression of the characteristics. Parents may be reluctant to seek a diagnostic assessment if the child appears to be coping reasonably well and clinicians may be hesitant to commit themselves to a diagnosis unless the signs are conspicuously different to the normal range of behaviour and abilities.

We…

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Asperger’s Syndrome – Removed in theory but not in practice……

Parallells my thinking.

Asking the Hard Question: A Story About Me, Jeffrey Tambor, and Being the One Who Asks Something Uncomfortable

Dylan asks an excellent question, one I feel certain many of us have asked.

Bruni, Frank: Sexism’s Puzzling Stamina

Op-Ed Columnist / By  FRANK BRUNI / Go to Columnist Page  / Frank Bruni’s Blog »
Published: June 10, 2013    575 Comments

This month the Supreme Court will issue raptly awaited decisions about affirmative action and gay marriage. But what’s been foremost in my thoughts isn’t race, sexual orientation or our country’s deeply flawed handling of both.

Earl Wilson/The New York Times/Frank Bruni

Readers’ Comments

“Sexism endures because too few of us are feminists. … Somehow “feminism” is too scary… .”

Margaret Hayes, Medford, MA
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It’s gender — and all the recent reminders of how often women are still victimized, how potently they’re still resented and how tenaciously a musty male chauvinism endures. On this front even more than the others, I somehow thought we’d be further along by now.

I can’t get past that widely noted image from a week ago, of the Senate hearing into the epidemic of sexual assault in the military. It showed an initial panel of witnesses: 11 men, one woman. It also showed the backs of some of the senators listening to them: five men and one woman, from a Senate committee encompassing 19 men and seven women in all. Under discussion was the violation of women and how to stop it. And men, once again, were getting more say.

I keep flashing back more than two decades, to 1991. That was the year of the Tailhook incident, in which some 100 Navy and Marine aviators were accused of sexually assaulting scores of women. It was the year of Susan Faludi’s runaway best seller, “Backlash,” on the “war against American women,” as the subtitle said. It was when the issue of sexual harassment took center stage in Clarence Thomas’s confirmation hearings.

All in all it was a festival of teachable moments, raising our consciousness into the stratosphere. So where are we, fully 22 years later?

We’re listening to Saxby Chambliss, a senator from Georgia, attribute sexual abuse in the military to the ineluctable “hormone level” of virile young men in proximity to nubile young women.

We’re congratulating ourselves on the historic high of 20 women in the Senate, even though there are still four men to every one of them and, among governors, nine men to every woman.

I’ll leave aside boardrooms; they’ve been amply covered in Sheryl Sandberg’s book tour.

But what about movies? It was all the way back in 1986 that Sigourney Weaver trounced “Aliens” and landed on the cover of Time, supposedly presaging an era of action heroines. But there haven’t been so many: Angelina Jolie in the “Tomb Raider” adventures, “Salt” and a few other hectic flicks; Jennifer Lawrence in the unfolding “Hunger Games” serial. Last summer Kristen Stewart’s “Snow White” needed a “Huntsman” at her side, and this summer? I see an “Iron Man,” a “Man of Steel” and Will Smith, Brad Pitt, Matt Damon and Channing Tatum all shouldering the weight of civilization’s future. I see no comparable crew of warrior goddesses.

Heroines fare better on TV, but even there I’m struck by the persistent stereotype of a woman whose career devotion is both seed and flower of a tortured private life. Claire Danes in “Homeland,” Mireille Enos in “The Killing,” Dana Delany in “Body of Proof” and even Mariska Hargitay in “Law & Order: SVU” all fit this bill.

The idea that professional and domestic concerns can’t be balanced isn’t confined to the tube. A recent Pew Research Center report showing that women had become the primary providers in 40 percent of American households with at least one child under 18 prompted the conservative commentators Lou Dobbs and Erick Erickson to fret, respectively, over the dissolution of society and the endangerment of children. When Megyn Kelly challenged them on Fox News, they responded in a patronizing manner that they’d never use with a male news anchor.

Title IX, enacted in 1972, hasn’t led to an impressive advancement of women in pro sports. The country is now on its third attempt at a commercially viable women’s soccer league. The Women’s National Basketball Association lags far behind the men’s N.B.A. in visibility and revenue.

Even in the putatively high-minded realm of literature, there’s a gender gap, with male authors accorded the lion’s share of prominent reviews, as the annual VIDA survey documents. Reflecting on that in Salon last week, the critic Laura Miller acutely noted: “There’s a grandiose self-presentation, a swagger, that goes along with advancing your book as a Great American Novel that many women find impossible or silly.”

I congratulate them for that. They let less hot air into their heads.

But about the larger picture, I’m mystified. Our racial bigotry has often been tied to the ignorance abetted by unfamiliarity, our homophobia to a failure to realize how many gay people we know and respect.

Well, women are in the next cubicle, across the dinner table, on the other side of the bed. Almost every man has a mother he has known and probably cared about; most also have a wife, daughter, sister, aunt or niece as well. Our stubborn sexism harms and holds back them, not strangers. Still it survives.

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I invite you to visit my blog, follow me on Twitter at twitter.com/frankbruni and join me on Facebook.
A version of this op-ed appeared in print on June 11, 2013, on page A23 of the New York edition with the headline: Sexism’s Puzzling Stamina.

Almenningen, Mikkel Adrian: Den perfekte familien (liksom) (8th grade)

Dette er en fortelling min sønn skrev i 8. klasse på Steinerskolen.

mikkeladrian's avatarDesigning my US life

This is a story I wrote in 8th grade, for school. I’m currently trying to translate it. So exclusive contese for Norwegian readers. 

 

”DEN PERFEKTE FAMILIE” (LIKSOM)

STIL

 

Jeg løp som en perfekt sprinter for jeg visste at jeg skulle vært hjemme for 15 minutter siden. Kommer jeg mer enn 16 minutter for sent, så får jeg tv, PC, ute og venneforbud. Jeg måtte forte meg nedover den bratte, glatte nedoverbakken, før jeg måtte løpe opp den sandete, bratte oppoverbakken, før jeg måtte løpe ned den strie, brede elven og opp den høye spiraltrappen som er pyntet med sølv, gull og edelstener. Likevel kom jeg inn hele 19 minutter for sent, så da ble det 3 uker uten venner, PC, tv og ute forbud. En ting som gjør det verre er at jeg må sitte igjen på hjemmeskole i 50 minutter i 8 uker. Da jeg kom hjem…

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